General information on Li Fraumeni Syndrome is comparatively rare, which is frustrating when you're trying to explain what it is to a doctor, nurse or other medical profession, let alone family and friends. However, the journal ONS Connect, published by the Oncology Nursing Society, have published a five-minute introduction to Li Fraumeni Syndrome.
Obviously aimed at the oncology nurse, it covers a reasonable level of detail and describes the current state of the art when it comes to the condition. If you need to point your nurse or doctor to a source that they can trust, then point them at this article:
http://www.onsconnect.org/2011/03/5min/an-introduction-to-li-fraumeni-syndrome
And of course, point them to http://www.tp53.co.uk as well...
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